SAA – LIS Duo attends all Eight Pool Swims

In 2016, Westchester Masters teammates Dan Levy and Carrie Dillon completed the mile swim at all eight of the Westchester and Rockland County pool events supporting Swim Across America – Long Island Sound. Levy is also a big part of the  Chappaqua Swim & Tennis Club pool swim, where he’s been the swim coach since 1998.

Levy made all eight events in honor of his sister, Karen, who passed away after a long battle with colon cancer in 2008.

Dillon was able to swim in seven of the events with Levy, in honor her dear friend Joe Arena, who passed away in 2016 from brain cancer.

The duo also supports Ed Hickey, who continues his daily mile swims from July 11th to September 11th in memory of his son. Hickey has reached 64% of his goal. If you’d like to support his swims, you can still do so on his Swim Across America page.

$50,000 Turns Into $1.7M

On July 1 Dr. Animesh Barua at SAA beneficiary Chicago Rush was notified that he has been awarded $1.7M in RO1 funding (the highest level) from the National Institute of Health. Swim Across America funding from the 2013 SAA Chicago swim enabled Dr. Barua to refine and bolster his study, which is the basis to developing a non-invasive early detection test for ovarian cancer. Currently, there are no early detection tests available for ovarian cancer – a very aggressive and hard-to-treat disease. If successful, Dr. Barua’s test could help the nearly 25,000 women in the United States who are diagnosed each year. Early detection is key. Roughly 14,000 women die annually of ovarian cancer. An effective, accurate test could drastically reduce that number. Critical seed money from Swim Across America was instrumental in allowing Dr. Barua to conduct his study which lead to the new funding from NIH.

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(L to R: Dr. Animesh Barua; Dr. Robert DeCresce, Acting Chicago Rush Cancer Center Director; Faye Jacobs; Dr. Josh Jacobs, Associate Provost for Research Chicago Rush)

 

TEAM HOPE Aims for a Million & More

We are Swimmers, we are Friends, we are Families…We are TEAM HOPE.

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TEAM HOPE in 2004 at North Hempstead CC

WE ARE SWIMMERS…

Mike Ford was your typical Swim Across America participant in 2000, when he swam with his daughter Keira in the Long Island Sound event as part of Team Doyle to support a family friend dealing with cancer.

After participating a few years in both the Long Island Sound and Sound to Cove swims, in 2004 Ford’s mission changed when three close friends were stricken with cancer. He was inspired to do more and created TEAM HOPE.

Nothing about Mike Ford’s Swim Across America story has been typical since then. Ford has kept the TEAM HOPE’s singular mission of fighting cancer focused and organized through the peaks and valleys over the last 13 years, and there have been plenty of both. TEAM HOPE has persevered to recruit and fundraise in larger numbers and will celebrate hitting the $1 million milestone as a team at the Sound to Cove benefit swim this week.

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WE ARE FRIENDS…

The original core of TEAM HOPE members were North Hempstead Country Club members and staff, originally made up of 28 swimmers plus kayakers and volunteers. With North Hempstead as their unofficial home, they participated in the NCAC pool swim and the Sound to Cove open water swim and raised $30,000.

Over the years, some traditions have emerged that make TEAM HOPE special: the annual dedication board with its inspirational messages, the plaque that goes to the outstanding team member annually and of course, the large amounts of pasta that have evolved into club-wide barbecues.

In 2014, the ‘unofficial home’ of TEAM HOPE, North Hempstead Country Club, officially became the third swim to become a part of the family. Now TEAM HOPE participates in three swims annually and is fundraising more than ever.

As TEAM HOPE has grown, Ford has been inspired by the hundreds of swimmers, the generosity of thousands of donors and the countless hours given by the volunteers.

Ford is quick to point out TEAM HOPE wouldn’t be where it is today without the dedication of  Laureen Keenan. He credits Keenan for assisting him tirelessly over the years, helping him stay organized with all volunteers and ultimately taking TEAM HOPE to greater heights.

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(l-r) Marty Bergin, Laureen Keenan, Dr. Marc Symons, Mike Ford

WE ARE FAMILY…

TEAM HOPE emphasizes family participation. This year, of the 92 team swimmers, 59 are participating with another family member. Ford is particularly proud of the year that three generations of swimmers from one family swam together. TEAM HOPE is family.

In fall 2005, Ford was sadly struck by a cruel irony when his wife Patti was diagnosed with cancer. The fight against cancer became very personal. Over the ensuing decade, Ford continued pushing TEAM HOPE forward as Patti faced her own struggle against cancer until her heartbreaking passing this year. The $1 million milestone is more than just a number for Mike, his daughter Keira and TEAM HOPE.

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TEAM HOPE in 2016

 

WE ARE TEAM HOPE…

As can be imagined, the $1 million fundraising milestone hasn’t been accomplished without many poignant moments. Ford continues to swim with TEAM HOPE and has adopted the custom of inscribing his swim cap with those he swims for.

Despite the bittersweet start to the year, there are signs that HOPE springs eternal. The timing of the $1 million milestone serendipitously occurs during North Hempstead Country Club’s centennial celebration. The breakthroughs in immunotherapy at Memorial Sloan Kettering (a TEAM HOPE beneficiary) are making national news. It’s easy to see how Ford easily finds inspiration by those that have surrounded TEAM HOPE:

  • His friend that courageously battled cancer and returned to swim with TEAM HOPE and regards the annual swim as his “most important day of the summer”
  • Father Rich Henning, the “Paddling Padre” that penned the TEAM HOPE Prayer and kayaked for a number of years
  • The 8-year-old that asked in lieu of gifts and presents for his birthday and his First Communion, that donations be made to TEAM HOPE and raised over $850 that year
  • The lifeguard that participated in two NHCC pool swims and was proud to tell Ford she has an internship in Oncology as she finishes her nursing school degree

As TEAM HOPE gets to over 90 members this year and hits the million dollar mark, we appreciate and recognize the commitment to the cause by Mike Ford and his incredible team. There are a million reasons to believe that this is only the beginning.

If you are moved to help Mike Ford and TEAM HOPE reach $1 million raised this year, you can contribute here.

Fun and Inspiration at SMAC Out Cancer

The fourth annual SMAC Out Cancer Pool Swim was another great success, raising over $84K and counting at the San Mateo Athletic. This year’s swim featured 11 fun events, seven Olympians, and honored multiple heroes in the fight against cancer.

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The four-year total raised by SMAC Out Cancer stands at an incredible $296K to fund cancer research at beneficiaries UCSF Benioff Children’s Hospital and Children’s Hospital Oakland Research Institute. Congrats to event director Diana Thomas for putting together another great event this year.

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The 2016 swim was named in memory of Jim Keller, who lost his battle with cancer in January. Keller was regarded as a brilliant and caring man that was a huge supporter of the San Mateo Athletic Club. He’s pictured here with Olympian Heather Petri in 2015.

The impact of the event was evident when the Olympians got to meet Wills Levy, a young hero that saved his brother’s life with a bone marrow transplant. The incredible and moving story of his younger brother Andrew’s battle with a rare and deadly cancer and unlikely recovery is featured in this emotional New York Times Magazine article. Olympians at the event included: Craig Beardsley, Mike Bruner, Susan Heon Preston, Roque Santos, Glenn Mills, Ellen Estes and Christine Magnuson.

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Wills Levy (center) with Olympians at SMAC

The event features fun events not usually associated with SAA pool swims including an aqua aerobics boot camp, and out-of-water fitness challenge and a dance party. Check out the whole photo library to see all the breathtaking images from the event. If you’re interested in starting a pool swim in your community, learn more here.

SAA on the Scene

Members of the Swim Across America family are active in their communities. SAA on the Scene shares stories from the “dry side” of our events where the SAA mission to make waves to defeat cancer is honored and recognized. Feel free to send submissions for future posts here.

Alliance for Cancer Gene Therapy (ACGT) Discovery Celebration
Harvard Club (New York) – April 14 

Greenwich-Stamford co-chairs Michele Graham and Lorrie Lorenz, and SAA Director of Events Craig Beardsley were in attendance to learn how dollars granted to ACGT are defeating cancer.

Swim Across America AYA Lounge One-Year Anniversary Celebration
Moffitt Cancer Center (Tampa) – April 26

SAA – Tampa Event Director Rob Shapiro and committee members Alicia Reyes-Shapiro, Tony Scicchitano, Janice Scicchitano and Olivia Fridgen participated in the one-year anniversary of the Adolescent and Young Adult Lounge opening. We profiled AYA in our lab series profile.

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SAA – Long Island Sound Swim Kickoff Event
Larchmont Yacht Club – April 27

The 24th annual Long Island Sound Open Water Swim Kickoff event took place on April 27th. Beneficiary representatives from Memorial Sloan-Kettering, Columbia University Medical Center and Cancer Support Team attended the event. Dr. Jedd Wolchok, MD PhD (of MSK) and Dr. Andrew Kung, MD PhD (of CUMC) spoke at the event sharing breakthroughs being made to defeat cancer in their labs.

2016 Larchmont Kickoff

Craig Beardsley (SAA Director of Events), Jean Fufidio, Dr. Jedd Wolchok, MD PhD, Dr. Sadna Budhu PhD, Tony Sibio (SAA – LIS chair and event director)

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Robyn Gartrell MD, Dr. Andrew Kung, MD PhD, Lucille Winton, Katie Shields, Dr. Jedd Wolchok, MD PhD, Dr. Sadna Budhu PhD, Dr. James Garvin MD PhD, Tony Sibio (SAA – Larchmont chair and event director)

Pool Swims Across America

In Pool Swims Across America, we feature local pool swims that raise awareness for cancer research. If you’re interested in getting your local swim team or pool involved, learn more here.

The Cheshire Pool Swim to Fight Cancer raised $6,400 on April 23 in Cheshire, CT. A big round of applause for high school junior Kevin Erickson for organizing and to the members of the Yale men’s swim team for coming by to participate in the great cause. Great work by everyone that came out to Cheshire Community Pool to make waves to defeat cancer!

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The inaugural Belleair Country Club Pool Swim took place on May 1 at Belleair Country Club in Belleair, Fl. The BCC Breakers did a great job hitting their fundraising goal in their first year, raising $4,030 to contribute to the Moffitt Cancer Center in Tampa!

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SAA Tee Time in Central Florida

The first event of the calendar year featuring Swim Across America as an official charity of the 7-Eleven Franchise Owners Association took place on April 6 in Orlando. The weather was beautiful for the 7-Eleven Central Florida Franchise Owners Association Charity Golf Tournament to benefit Swim Across America (Tampa) and Moffitt Cancer Center.

The SAA family was well represented with Craig Beardsley, Craig Cordell (SAA – Tampa), Alison Pease (SAA – Chicago), Olympian Rowdy Gaines, Susan Davis (Nestlé), and Mark Gramlich (Kellogg’s) in attendance. The tournament successfully raised $20,711.00 for the SAA – Tampa which benefits the Tampa Moffitt Cancer Center.

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Check Presentation for SAA – San Francisco

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(L-R) Mike Bruner (Olympian), Dr. Robert Goldsby (UCSF beneficiary), Susan Helmrich (SAA-SF Co-Event Director), Dr. Julie Saba (UCSF Oakland beneficiary), Heather Petri (Olympian and Honorary Chair SF-SAA) and Anthony DuComb (SAA-SF Co-Event Director).

On March 14, members of the Swim Across America – San Francisco family took part in a special check presentation at the Children’s Hospital Oakland Research Institute.

 

San Francisco Co-Event Directors Susan Helmrich and Anthony DuComb represented Swim Across America along with Olympians Mike Bruner and Heather Petri as they presented a $450,000 check to UCSF Benioff Children’s Hospitals. Dr. Robert Goldsby  (UCSF) and Dr. Julie Saba (UCSF Oakland) both spoke at the event and thanked all the SAA swimmers, kayakers, volunteers, olympians and donors for their contributions to defeat pediatric cancer.

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Event Flyer
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(L-R) DuComb, Helmrich, Dr. Saba, Dr. Goldsby

Lab Series #1: Moffitt Cancer Center

Your donations allow SAA to provide funding to some of the world’s most renowned cancer institutions. This is the first in a series featuring the SAA LABS that our beneficiaries have named in honor of the efforts of Swim Across America.

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Swim Across America Adolescent & Young Adult Lounge

This month, we are profiling the Swim Across America Adolescent and Young Adult Lounge at the Moffitt Cancer Center in Tampa. The ribbon-cutting ceremony took place in April 2015 (featuring Tampa Bay Open Water Swim Event Director Rob Shapiro, former SAA CEO Janel Jorgensen-McArdle and current SAA CEO Rob Butcher). The SAA AYA Lounge is used by the approximately 100 young adult cancer patients at the hospital every day. Olivia Fridgen, AYA and LATTE Program Coordinator at Moffitt provided this insight.

How has the reception been to the SAA AYA Lounge by patients?
The reception from patients has been amazing. The corkboard wall on the lounge shows patient artwork, the white board has encouragement from patient to patient and the lounge journal has pages and pages of thoughts and inspirational words. It has been a respite for inpatients who need a change of scenery, as a place to spend time with their family and friends who come to visit and a great spot for the AYA (Adolescent and Young Adults) Program to host events and support groups.

Since the SAA AYA Lounge is different from  other research-based SAA Labs, what interesting facts can you pass along?
We are the 1st AYA Lounge in Florida, the 3rd in the country. We are also unique because our lounge provides physical space not only for our inpatients but our outpatients as well. Some of the traditional lounges are built in conjunction with inpatient units and therefore are not accessible to outpatients. Another unique mention is that our Moffitt AYA Patients actually designed the entire space – they picked out color schemes, fabrics, flooring and lighting so that we were confident our lounge was hitting the mark and what AYA patients would actually want in a space.

Do patients get treatment in the SAA AYA Lounge?
No, the lounge is a place to get away from the hustle bustle of the hospital life. The Lounge has the latest gaming systems, comfy couches, white boards, board games and art supplies. The inpatient floors of the hospital, where admitted patients would receive treatment, is steps away which provides convenience and access to the lounge.


 

How much did it cost to build the SAA AYA Lounge?
SAA has donated nearly $140,000 to the AYA program over the years and monies from the 2014 race were specifically designated to the creation of the SAA AYA Lounge.

Does the AYA Group anticipate this to be a trend in hospital systems moving forward?
Yes, organizations like Teen Cancer America are working with AYA Programs across the country to fund and offer physical spaces in hospitals for young cancer patients.

Why is it important for Moffitt and other hospitals to have a lounge for adolescent and young adults?
Adolescent and Young Adult patients feel like they are the only 20- or 30-year-old in the entire hospital. While we know that isn’t true, each patient is seen in their respective clinic (for example, if you have breast cancer you’re seen in the Breast Clinic, if you have Lung Cancer you’re seen in Thoracic, etc.), so they never get the chance to run into one another. The Lounge provides a space where Young Adult cancer patients can actually meet another young person with cancer. Because it’s in a communal space, it’s less awkward, more organic and can reduce the feelings of isolation many AYAs feel, which is important to their psychosocial state of mind and also can create lasting friendships. Many of our patients say that family and friends are extremely supportive, but no one quite “gets it” like another young cancer patient.