Colorado Community Makes Waves to Benefit Children’s Hospital Colorado

Picture a sunny and warm mid-August morning in Colorado. Retired Olympians such as Missy Franklin and George DiCarlo are smiling with water enthusiasts of all ages and abilities. They enter the water of Chatfield Reservoir in Littleton to “Make Waves to Fight Cancer” with the Swim Across America-Denver charity swim. There’s a sense of community as supporters and family cheer for them. Not because they’ll be racing for first place, rather because they’re all there to raise money that will provide grants for pediatric cancer at Children’s Hospital Colorado.

Created in 2018, Swim Across America-Denver has granted $545,917 to research projects at the Center for Cancer and Blood Disorders at Children’s Colorado. Uniquely, all the proceeds from Swim Across America-Denver stay in our community to fund research projects at Children’s Colorado where philanthropic grants from Swim Across America are necessary to make progress in giving hope to kids and their families who are fighting cancer. Here are the projects that are being funded by SAA:

  • The acute myeloid leukemia (AML) and myelodysplastic syndrome (MDS) research project, led by Drs. Amanda Winters, Taizo Nakano, and Craig Forester, aimed at bringing new therapies into phase II of clinical trials for pediatric MDS and AML to better define how to diagnose, classify and treat MDS patients.
  • The tumor research project, led by Dr. Adam Green, which will characterize the immune response to new brain tumors to better establish which types are amenable to cancer immunotherapy and provide a new prognostic marker for these diseases.
  • The sepsis biomarker project, led by Dr. Leonora Slatnick, will lead to novel ways of diagnosing and managing infectious complications in immunosuppressed patients.
  • The CAR-T Cell project, led by Dr. Lindsey Murphy and collaborating with Dr. Winters and members of the BMT-Cellular Therapeutics team, aims to use novel laboratory methods for detecting CAR-T cells in patients receiving those therapies to better understand how patients respond to these therapies and improve cure rates.

“With [Swim Across America grants] we’re building the largest national database on pediatric myelodysplastic syndrome (MDS) to collect data on all of the past and future children with this life-threatening disorder. SAA’s contribution will help encourage research collaboration at over 50 children’s hospitals to enter data that will help develop a national standards-of-practice to treat pediatric MDS,” said Taizo Nakano, MD.

Grants from SAA will also be used to fund site initiation of a nationwide clinical trial for pediatric MDS at Children’s Colorado and will also be critical for Dr. Forester and Dr. Winters as they investigate the biological activity of the drug combination being tested.

“This will allow us to understand why the drugs work for pediatric MDS and perhaps enable us to predict at diagnosis which children with MDS are more or less likely to benefit from these drugs,” said Amanda Winters, MD.

“We welcome and invite our Colorado community to join us,” said Nicole Vanderpoel and Jessica Vitcenda, community leaders for SAA—Denver. “You can swim, volunteer or do a virtual activity with all the proceeds staying in Denver to benefit Children’s Colorado.”

Learn more about SAA-Denver and how you can get involved by visiting Swim Across America – Denver.  

35 Stories of Impact: Team Carolyn of SAA-Nassau/Suffolk

Carolyn Jaenisch, Caitlin Chestler, Gregory Chestler & Steve Chestler
Swim Across America – Nassau/Suffolk

1 year with Swim Across America
Steve 65; Raised over $100,000 with Team Carolyn

We are looking forward to joining a community dedicated to fighting cancer, the disease that took Carolyn Jaenisch from us, while simultaneously doing something she loved : swimming.

Carolyn Jaenisch’s diagnosis of Terminal Adenocarcinoma in July 2021 came as a shock to the entire family. She was an avid swimmer who swam with Long Island masters and Excel Swim Club for the past 21 years on Long Island. When she was diagnosed with Stage 4 Lung Cancer and had her first back operation she was told she would be swimming again in 2 months. Carolyn was all about family and swimming.  

So when her family went looking for a charity event, they saw the SAA-Sound to Cove swim at Pryibil Beach on July 31, 2022, and got in touch with Swim Across America CEO Rob Butcher and local event chair Kevin Shine to learn more and make a plan to participate. Carolyn was so excited to get involved with Swim Across America.

Carolyn sadly passed away in November of 2021, just 4 months after her diagnosis, and before she could witness her family swimming in her honor. Carolyn’s passing left behind her husband, Steven Chestler, 24-year old son Gregory and 19-year old daughter Caitlin; and they are the founders of Team Carolyn for Swim Across America.

This July will be Team Carolyn’s first year participating in a Swim Across America event. “We are looking forward to joining a community dedicated to fighting cancer, the disease that took Carolyn Jaenisch from us, while simultaneously doing something she loved : swimming” says Steve Chestler.  Steve, Caitlin, Gregory and other members of Team Carolyn have rallied together to raise an amazing $100,000 (and counting) to support cancer research and clinical trials. 

“We know she would be honored that she has been supported and loved so much.”

Swim Across America is celebrating 35 years of impact in 2022. SAA has raised $100 million since its inception in 1987 to support cancer research and clinical trials across the U.S. Please contact Jeni Howard at jhoward@jhowardpr.com for media inquiries.

‘WaveMakers’ Docu-Series about Swim Across America Premieres July 8 to Share Stories of Hope in the Fight Against Cancer

Grammy Award-Winner John Driskell Hopkins of the Zac Brown Band Contributes Theme Song ‘I’ll Take You Home’  and Provides Narration for ‘WaveMakers’

CHARLOTTE, July 1, 2021 — Every 15 minutes, 50 Americans are diagnosed with cancer. That’s close to 1.9 million new cases of cancer diagnosed just this year with an estimated 600,000 cancer deaths. But those statistics don’t tell the whole story. Within someone’s cancer journey, there are remarkable stories. Stories of triumph, stories of courage, stories of pioneers and stories of heartbreak that inspire.

WaveMakers is a new docu-series about Swim Across America, produced by Browning Production & Entertainment, and airing on the Discovery Life Network beginning July 8 at 8:00 p.m. (EST). It is a six-episode series that shares the stories of patients, survivors, family members, oncologists, swimmers, volunteers and Olympians who are all striving to make waves in the fight against cancer.  

“WaveMakers showcases the Swim Across America community that is changing the face of cancer,” noted Rob Butcher, CEO of Swim Across America. “Our grants have led to breakthrough treatments such as immunotherapy that are saving lives. WaveMakers is a beautiful showcase of stories, and how the disease changes lives. We hope that viewers will be inspired and in watching WaveMakers know that there is hope.”

Grammy Award-winning Zac Brown Band-member John Driskell Hopkins wrote the theme song “I’ll Take you Home” for WaveMakers and provides the voice-over for the six episodes.

“I wrote ‘I’ll Take You Home’ to honor our family friend Grace Bunke, who sadly lost her life to osteosarcoma, and inspire her mother Vicki who is carrying on Grace’s legacy through Swim Across America to help others,” said John Driskell Hopkins. “I’m honored to be part of the story that brings a message of hope to so many.” 

WaveMakers six-part docu-series will air for six weeks on Discovery Life Network. The first episode will air July 8 at 8 p.m., (EST). The trailer and broadcast schedule with show titles are available at wavemakers.tv.

Episode 1: July 8th; A 14-year old with osteosarcoma patient inspires a movement

Episode 2: July 15th; A mom honors her daughter’s legacy

Episode 3: July 22; Olympians and survivors inspiring each other

Episode 4: July 29; Why is it so hard to cure cancer?

Episode 5: August 5; When will cancer finally be cured?

Episode 6: August 12; A family overcomes heartbreak to find purpose with Swim Across America

Media Inquiries: Jenifer Howard | 203-273-4246 jhoward@jhowardpr.com

About Swim Across America: Swim Across America (SAA) is dedicated to raising money and awareness for cancer research, prevention and treatment through swimming-related charity events. Founded in 1987, Swim Across America has granted more than $100 million that has funded cancer research and clinical trials. With the help of volunteers nationwide and Olympians, Swim Across America grants have been at the forefront of leading to new treatments in immunotherapy and gene therapy. To learn more visit swimacrossamerica.org or follow on Facebook, Instagram and Twitter.

2020 Swim Across America Highlights: Douglas Whitlock Bicycles from Chicago to St. Louis

This year, when Swim Across America pivoted from open water swims to virtual challenges, people have been finding all kinds of fun and creative ways to support Swim Across America and cancer research in their community. We’re highlighting some of the best ‘Making Waves to Fight Cancer’ stories with Swim Across America in 2020!

Douglas Whitlock, Swim Across America – St. Louis participant and partner at Sandberg Phoenix, one of SAA-St. Louis’s official sponsors, took his SAA -Coast to Coast Challenge to whole new level by bicycling from Grant Park in Chicago all the way to The Gateway Arch in St. Louis – a bike ride that is over 300 miles! Not only did he complete the journey, he and his team raised over $13,000 for groundbreaking cancer research and clinical trials at Siteman Cancer Center along the way! Congratulations to Doug for finishing such a challenging journey and for inspiring us all.

Advice from Dr. Tara Kirk Sell, SAA Olympian Ambassador and Pandemic Policy Expert

In 2004, Dr. Tara Kirk Sell broke the world record in the 100 breaststroke (Short Course Meters) and earned a silver medal at the 2004 Olympics in Athens. When she’s not supporting Swim Across America-Baltimore as an Olympian Ambassador, Dr. Sell conducts, manages, and leads research projects to develop a greater understanding of potentially large-scale health events at Johns Hopkins.

Dr. Sell was an expert witness at a congressional committee hearing on COVID-19 in early March and Swim Across America was lucky enough to get her thoughts on our current position.

“I’ve been working on pandemic preparedness issues for the past decade and my Center, the Johns Hopkins Center for Health Security has been on COVID-19 since the beginning,” said Dr. Sell. “My work has always focused on trying to improve our country’s preparedness for serious pandemics like COVID-19. I work on a range of different topics including public health communication, misinformation, crowd sourced disease forecasting, community resilience, and public health policy formation.”

When asked for her expert advice to the Swim Across America community, Dr. Sell provided this powerful message:

“I think the most important thing that people can do in their response to COVID-19 is right-size their understanding of the seriousness of the disease. On the one hand, it’s a serious problem. On the other, there’s no need to panic. We need to take thoughtful precautions like limiting unnecessary contact with others, having good hand hygiene and respiratory etiquette, and staying home when sick to manage the outbreak now and for the foreseeable future.”

“The SAA community is no stranger to the idea that we all need to join together and make shared sacrifices to protect the vulnerable. This pandemic is not different.”

Here’s video from Johns Hopkins featuring Dr. Sell in early March. For the most updated guidance on COVID-19, visit: https://www.coronavirus.gov/

Dr. Tara Kirk Sell is a Senior Scholar at the Johns Hopkins Center for Health Security and an Assistant Professor in the Department of Environmental Health and Engineering at the Johns Hopkins Bloomberg School of Public Health. 

Fundraising Made Easy: Facebook Integration Now Live for SAA

Swim Across America is making fundraising easier through social media!

You can now link your Swim Across America fundraising page directly with Facebook. Once you register for your SAA charity swim, you can directly link your personal Swim Across America fundraising page to Facebook. You’ll be able to easily spread the word, collect donations and track your progress on Facebook. All donations through Facebook will be received by SAA and reflected in your fundraising thermometer!

How To Connect Your Fundraiser to Facebook:

1. Log in to your participant center.

SAA PC

2. Click on MY EVENTS in the top menu and choose the event(s) you’d like to connect.

3. In the middle of the page, click ‘Connect to Facebook Fundraisers.’

 

3. You will be redirected to Facebook to enter your login information.

4. Success! After you connect your Facebook profile, you can view your fundraiser. Click on “Go to Facebook Fundraiser.”

 

Swim Across America Facebook

5. If you’d like, edit your fundraising information and details specific to your participation.

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6.  Promote your fundraiser by sharing a post on your timeline or inviting friends and family to your fundraising page.

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This new Facebook integration allows you to spread the word of your fundraising efforts and reach more people quicker and easier then ever before. For questions about using fundraisers on Facebook scroll down to the bottom part of our FAQ page.

Log in and get started now!

25 Years of SAA – Long Island Sound History

2017 will mark SAA – Long Island Sound’s 25th year raising money to fight cancer through research, as well as provide for those who are going through treatment. We give thanks to all of you who have partnered with us throughout the years to make this event such a success. Below is a compilation of all historical photos, videos and flyers. We hope you’ll join us again this year to celebrate our 25th Anniversary. All historical photo albums can be found here.

2009:

2010:

2011:

2012:

2013:

2014:

2015:

2016:

 

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2017 Captain’s Dinner Kickoff

Saving Lives at the Johns Hopkins Swim Across America Lab

Stefanie Joho joined SAA – Baltimore this year to share her uplifting story. Four years ago at 22-years old she was diagnosed with stage 2 colon cancer. Stefanie went through repeated chemo with no positive response, and the cancer spread to stage 4. Her doctors gave her weeks to live. Desperate and not willing to give up, her sister googles and finds Dr. Luis Diaz at our beneficiary Johns Hopkins Medicine.

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Dr. Diaz told Joho to come immediately to JHU where she participates in an immunotherapy clinical trial of Keytruda funded–yes funded–by your donations to Swim Across America. The trial saved her life (she has “no evidence of disease NED”), she has a bright future and Keytruda is now FDA approved. Read Stefanie’s story in the New York Times and if you are inspired by the work being done through Swim Across America labs, please consider donating to SAA: http://bit.ly/SAAdonation.

Genetic tests for mismatch repair deficiency are commercially available. But insurers might not pay for the drugs — Keytruda and Opdivo cost $150,000 a year — based on such a small study. The study was paid for by Swim Across America and other charities, and the National Institutes of Health.  – New York Times

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SAA Lab Doctor speaks to Montclair Pool Swim Students

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The 3rd Annual Swim to Win Against Cancer Pool Swim took place earlier this year in Montclair, N.J., featuring student-athletes from Montclair High School and Newark Academy.

The students participating in the annual swim challenge were lucky enough to meet and participate in a Q&A session with Dr. Taha Merghoub, visiting from an SAA beneficiary, Memorial Sloan-Kettering Cancer Center. Dr. Merghoub is also the Co- Director of the Ludwig Collaborative and Swim Across America Lab at MSK. Sarah Dillon Soden, Associate Director, Annual Giving at MSK also spoke at the event.

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Dr. Taha Merghoub of Memorial Sloan-Kettering Cancer Center

The students learned how the nearly $50,000 they’ve raised over the last three years at their pool swim challenge has helped fund the SAA Lab where Dr. Merghoub investigates the pathogenesis and treatment of melanoma.

A special thanks goes out to Montclair High School Swim Coach Ed Koenigsfest and Newark Academy Swim Coach Billy Blomn for supporting SAA and creating a great pool swim challenge where the competition focuses on a common goal.

Learn more about starting an SAA Pool Swim in your community here.

Lab Series #1: Moffitt Cancer Center

Your donations allow SAA to provide funding to some of the world’s most renowned cancer institutions. This is the first in a series featuring the SAA LABS that our beneficiaries have named in honor of the efforts of Swim Across America.

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Swim Across America Adolescent & Young Adult Lounge

This month, we are profiling the Swim Across America Adolescent and Young Adult Lounge at the Moffitt Cancer Center in Tampa. The ribbon-cutting ceremony took place in April 2015 (featuring Tampa Bay Open Water Swim Event Director Rob Shapiro, former SAA CEO Janel Jorgensen-McArdle and current SAA CEO Rob Butcher). The SAA AYA Lounge is used by the approximately 100 young adult cancer patients at the hospital every day. Olivia Fridgen, AYA and LATTE Program Coordinator at Moffitt provided this insight.

How has the reception been to the SAA AYA Lounge by patients?
The reception from patients has been amazing. The corkboard wall on the lounge shows patient artwork, the white board has encouragement from patient to patient and the lounge journal has pages and pages of thoughts and inspirational words. It has been a respite for inpatients who need a change of scenery, as a place to spend time with their family and friends who come to visit and a great spot for the AYA (Adolescent and Young Adults) Program to host events and support groups.

Since the SAA AYA Lounge is different from  other research-based SAA Labs, what interesting facts can you pass along?
We are the 1st AYA Lounge in Florida, the 3rd in the country. We are also unique because our lounge provides physical space not only for our inpatients but our outpatients as well. Some of the traditional lounges are built in conjunction with inpatient units and therefore are not accessible to outpatients. Another unique mention is that our Moffitt AYA Patients actually designed the entire space – they picked out color schemes, fabrics, flooring and lighting so that we were confident our lounge was hitting the mark and what AYA patients would actually want in a space.

Do patients get treatment in the SAA AYA Lounge?
No, the lounge is a place to get away from the hustle bustle of the hospital life. The Lounge has the latest gaming systems, comfy couches, white boards, board games and art supplies. The inpatient floors of the hospital, where admitted patients would receive treatment, is steps away which provides convenience and access to the lounge.


 

How much did it cost to build the SAA AYA Lounge?
SAA has donated nearly $140,000 to the AYA program over the years and monies from the 2014 race were specifically designated to the creation of the SAA AYA Lounge.

Does the AYA Group anticipate this to be a trend in hospital systems moving forward?
Yes, organizations like Teen Cancer America are working with AYA Programs across the country to fund and offer physical spaces in hospitals for young cancer patients.

Why is it important for Moffitt and other hospitals to have a lounge for adolescent and young adults?
Adolescent and Young Adult patients feel like they are the only 20- or 30-year-old in the entire hospital. While we know that isn’t true, each patient is seen in their respective clinic (for example, if you have breast cancer you’re seen in the Breast Clinic, if you have Lung Cancer you’re seen in Thoracic, etc.), so they never get the chance to run into one another. The Lounge provides a space where Young Adult cancer patients can actually meet another young person with cancer. Because it’s in a communal space, it’s less awkward, more organic and can reduce the feelings of isolation many AYAs feel, which is important to their psychosocial state of mind and also can create lasting friendships. Many of our patients say that family and friends are extremely supportive, but no one quite “gets it” like another young cancer patient.